When Will The Music Stop?

  Sara and THE LAST MARATHON team The blog this week has a very special guest blogger. My dear friend Sara Eolin, co-owner of Rocket Film and the force behind the making of THE LAST MARATHON documentary. I'll be back next week live from PORTUGAL! ...remember make good days great, no bad days allowed - Anton --------------- Hello everyone. Long time reader, first time writer. I have been asked to hop on to blog this week which is a great honor and I hope I do it justice. While prepping, I realized I have NO pictures with Anton. None. Nada. Had to remedy that, so I was VERY lucky to get THIS!!! WOOO!!!!    Totally adorable We look super happy, not just because we were laughing for 2 hours straight, but that the ACT for ALS bill passed the SENATE and was going to be signed by President Biden the next day! (Should have happened Friday!) This is a total gamechanger for the ALS community, and Anton and Mari had a hand in getting lawmakers to see the brutal reality this disease brings to

Welcome to Season 2, Episode 6 of my blog "When Will The Music Stop". I so enjoy sharing my life and, on occasion my relevant past, with you and out loud. Hope and despair, laughter and tears, happiness and sadness, love and indifference, victories and defeats. We have all experienced these extremes and many others, many many times over. Sadly, I scan through a majority of these emotions daily. Prior to ALS I thought I would live to age 81. Why 81, I don't exactly know but it has to do with baseball. It made sense to me when I was 54, I was heading into the top of the 7th inning. It's downright creepy and wrong to know your expiration date, give or take a few months. Trust me, it is so much more peaceful not knowing. Through it all, I have one thing that keeps me positive and optimistic, and that is...... .....HOPE. A life without Hope is not a life lived in today, and today is all we have. Sometimes I have to settle for the willingness to be hopeful and that has to b